CO "dementia dilemma" - Mr Mickael B

[Fiona766]

Bonjour à toutes et à tous,

J'ai une dernière écoute. Je n'ai fait que cela ce weekend écouter, écouter et encore écouter! voici avec ma retranscription entre un journaliste et un médecin je crois, J for journalist et D for Doctor.

Je vous remercie beaucoup. voici ma retrancription:

J-”Having a ……dementia…We heard about the classic symptoms of the condition that can help a doctor to make a diagnosis with patient, but many...  ..in a progressively... cure of course! It’s extremely difficult to know the part what/that had it (their loved one tell they have it)…reality believed that....Now that they had it 

Can someone make plans for the future and the wider Community Hospital!?.... Is there a general guide/guidance within the Medical profession what doctors should do tell or not tell her patients.”

D-” My feelings are they are better off knowing and it's usually seems to be the case that when you tell somebody they got dementia they're able to handle it reasonably well.” 

J- “But you have sympathy with relatives perhaps like Alice who just fell it will be too upsetting for their loved ones”. 

D- “Yes, I think we can’t ….. is also difficult for doctors to tell people any bad news and in particular  this sort of bad news. the figures that was usually given a set of 70 to 80% of people when they're asked: What/Would you want to tell your relatives the diagnosis they say no but having said that a different question………..if you have dementia would you want to know then the same proportion 70% say yes of course we want to know if there's something wrong with us”

J-” Is  this general guidance within the Medical Profession about what doctors should do?”

D-”The general guidance from the medical council about …...that they require in a way that then able to understand the way it works best for me is when I’ve gone to see them for the initial assessment and I asked them what they would like to know once we've done all of our tests if we're able to tell the more information what exactly they would how much they would like to know about that and that seems to be better than trying to trust a diagnosis upon them ….even ensure whether they want to shut down”

J-”And Alice was saying how...shut down ..daughters..friends…………………...support.”

D- “Yes, that’s certainly a story that I’ve heard before but I’ve never seen a patient this week

I've been seen for about 3 or 4 years and It's always been extremely open about its darkness….. a little cards… the ….society...show people what problem is”

J-”.............What the problem is everyone to decide……”

D-”I think so. This is partly because if we can't even talk about this disease  if it has so much stigma attached to it it's just going to add to the burden of having me the underlying disease underlying disease you also have all these terrible negative attitudes from everybody, everybody you come across. Just being human lead truthful helps”

D-”..... thank you very much indeed 

 

Annabelle.

AUDIO 09a Dementia_dilemma_to_tell_or_not_to_tell - version intégrale.mp3

[Michael B.]

Bonjour Annabelle.

Permets moi de saluer tout d'abord ton effort et ton travail. Tes enregistrements ne sont clairement pas destinés aux débutants.

Attention, au début, le premier mot est incomplet, ensuite, il y a une coupure après la première partie, mais il est évident qu'à la reprise, l'on entend toujours le même locuteur. J'ai distingué l'un et l'autre avec A et B.

There you go:

Citation

A - [...] strand of features about dementia we heard about the classic symptoms of the condition that can help a doctor to make a diagnosis for his patient. But many of you have e-mailed to say that with dementia being a progressively debilitating condition and one which has no cure of course it's extremely difficult to know whether to pass on that diagnosis, to actually tell a loved one that they have it. Many relations believe such a bleak prospect would be far too upsetting. Others, on the other hand, say that only by knowing their diagnosis can someone make plans for the future, they also think it's important to tell other members of the family and the wider community.
Well Dr Julian Hughes is a consultant in old-age psychiatry at North Tyneside General Hospital. Two very different stories there Dr Hughes, is there a general guidance within the medical profession about what doctors should do, tell or not tell their patients?

B - My feeling is that they are better off knowing and it usually seems to be the case that when you tell somebody that they've got dementia they're able to handle it reasonably well.

A - But you have sympathy with relatives perhaps like Alice who just fear it'll be too upsetting for their loved one?

B - Yes I think we've got complete sympathy with that view because in fact it's also very difficult for doctors to tell people any bad news and particularly this sort of bad news. The figures that are usually given are sort of 70-80% of people when they're asked would you want your relative to be told the diagnosis they say no. But having said that when they're then asked a different question, which is if you have dementia would you want to know, then the same proportion 70 or 80% say yes of course we'd want to know if there was something wrong with us.

A - And is there general guidance within the medical profession about what doctors should do?

B - The general guidance from the General Medical Council is that people should be given information that they require in a way that they're able to understand. The way it works best for me is if when I've gone to see them for the initial assessment, I ask them what they would like to know once we've done all of our tests, if we're able to tell them more information, what exactly they would... how much they would like to know about that. And that seems to be better than trying to thrust a diagnosis upon them when you're not even sure whether they want to know that or not.

A - And Alice was saying how almost her world shut down, she didn't tell her daughters, shied away from her friends, whereas of course the Whitcombes told the world and his wife and it seemed to work very well for them when they did, they got a lot of support.

B - Yes and that's certainly a story that I've heard before, I know that I've seen a patient this week who I've been seeing for about three or four years and he's always been extremely open about his diagnosis and in fact he has a little card that the Alzheimer's Society gave him which he can just show people which explains what the problem is.

A - So it's obviously up to everyone to decide in their individual case but you would urge them to think of perhaps broadening the news and the information rather than keeping it to themselves?

B - I think so and this is partly because if we can't even talk about this disease, if it has so much stigma attached to it it's just going to, as it were, add to the burden of having the underlying disease, so you don't just have the underlying disease you also have all these sort of terribly negative attitudes from everybody you come across, just being humanly truthful helps.

A - Dr Julian Hughes, thank you very much indeed.
 

Anytime,

Michael B.

Modifié le 19 avril 2021 par Michael B.

[Fiona766]

Bonjour Mr Mickael,

Je vous remercie pour vos encouragements et votre correction. Je ne sais si l'accent était encore irlandais mais que ce fut parfois difficile.

I thank you very much for your positive encouragements reguarding my work. I also thank you for correcting me. I don't know if it was an Irish accent but it was difficult!!

Bonne journée,

Annabelle.

[Michael B.]

Comme j'aime le dire en français, ce fut un plaisir ! 

Michael. 

PS: L'accent était britannique cette fois. 

Modifié le 20 avril 2021 par Michael B.